NYU Langone’s Comprehensive Neurofibromatosis Center offers personalized and compassionate care for children and adults with neurofibromatosis (NF) types 1 and 2 and schwannomatosis. These disorders can cause tumors, which are usually benign, to form on nerves.
These conditions can affect many parts of the body. Because of this, we have put together a team of specialists to address the challenges our patients may experience. These specialists are part of the world-class team at NYU Langone Medical Center.
We are committed to researching better and safer treatments for people with NF. We lead clinical trials for NF, and are the only New York member of the Neurofibromatosis Clinical Trials Consortium. We have received the Affiliate Clinic designation from the Children’s Tumor Foundation, a nonprofit organization committed to ending NF through research.
We have two nurse coordinators dedicated to helping patients and their families coordinate the care they need.
To schedule an appointment, please contact our nurse coordinators, Carole Mitchell, MS, RN, or Celia Engelson, MS, FNP, at 212-263-9695. If you are hearing impaired, please email email@example.com or firstname.lastname@example.org.
Our nurse coordinators discuss your needs by phone or email and determine which of our doctors best matches your specific condition and concerns. All prior imaging and medical records are requested. A social worker may contact you to assist with any special needs you may have.
At your first appointment, a detailed physical and neurological exam is performed and all previous records and tests are reviewed. Depending on your diagnosis, we may recommend additional tests, such as imaging studies and genetic testing.
The results of these tests will help determine the care plan that is best for you. Other NYU Langone experts—including behavioral and learning specialists, geneticists, neurosurgeons, orthopedic surgeons, audiologists, plastic surgeons, and ear, nose, and throat specialists (also known as otolaryngologists)—may assist in your care.
Learn more about our approach to neurofibromatosis treatment.