NYU Langone’s Comprehensive Neurofibromatosis Center offers personalized and compassionate care for children and adults with neurofibromatosis (NF) types 1 and 2 and schwannomatosis. These disorders can cause tumors, which are usually benign, to form on nerves.
Care of Neurofibromatosis
Our team diagnoses and treats all types of neurofibromatosis and schwannomatosis.Learn More
These conditions can affect many parts of the body. Because of this, we have put together a team of specialists to address the challenges our patients may experience. These specialists are part of the world-class team at NYU Langone.
We are committed to researching better and safer treatments for people with NF. We lead clinical trials for NF, and are the only New York member of the Neurofibromatosis Clinical Trials Consortium. We have received the Affiliate Clinic designation from the Children’s Tumor Foundation, a nonprofit organization committed to ending NF through research.
Care for children is provided through Hassenfeld Children’s Hospital at NYU Langone.
We have a nurse coordinator dedicated to helping patients and their families coordinate the care they need.
Our nurse coordinator discusses your needs by phone or email and determine which of our doctors best matches your specific condition and concerns. All prior imaging and medical records are requested. A social worker may contact you to assist with any special needs you may have.
At your first appointment, a detailed physical and neurological exam is performed and all previous records and tests are reviewed. Depending on your diagnosis, we may recommend additional tests, such as imaging studies and genetic testing.
The results of these tests will help determine the care plan that is best for you. Other NYU Langone experts—including behavioral and learning specialists, geneticists, neurosurgeons, orthopedic surgeons, audiologists, plastic surgeons, and ear, nose, and throat specialists (also known as otolaryngologists)—may assist in your care.
Patients of the Comprehensive Neurofibromatosis Center have access to our world-renowned neurosurgeons.
NYU Langone physicians care for conditions involving the ear and run one of the country’s largest auditory brainstem implant programs.
Children with neurofibromatosis type 2 who may not qualify for or benefit from a cochlear implant may be eligible for this clinical study.