Muscle & Bone Treatments for Familial Dysautonomia

NYU Langone experts help people with familial dysautonomia who are at risk for muscle, bone, and joint problems. Limited awareness of body position due to underdevelopment of the sensory nerves can cause repeated injuries and poor posture. Over time, these problems can cause progressive damage to bones and joints, including those in the spine.

Therapy for Muscle Problems

Children and adults who have familial dysautonomia are at risk of developing muscle problems due to their inability to receive sensory information from the muscle. Orthopedic experts at the Dysautonomia Center offer a variety of treatments to improve movement and prevent injury.

Athletic tape wrapped around the joints, for example, can improve awareness of the limbs during movement and help guide movements to improve balance and gait.

Our team coordinates care with a variety of therapists, who can create a targeted physical activity program to enhance muscle strength and coordination.

Children with familial dysautonomia receive care at the Dysautonomia Center through Hassenfeld Children’s Hospital at NYU Langone.

Devices and Surgery for Orthopedic Problems

When needed, dysautonomia experts may consult with orthopedic specialists at NYU Langone. They are experienced in treating fractures and joint problems caused by repeated injuries. These experts can also provide treatment for scoliosis, an abnormal curvature of the spine, in children and adults who have familial dysautonomia.

Treatment may include positioning devices, such as splints and casts, or surgery to correct bone and joint deformities.

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