Welcome to the

Comprehensive Neurofibromatosis Center

Our team of experts offers treatment for the diverse symptoms of neurofibromatosis and schwannomatosis.

NYU Langone’s Comprehensive Neurofibromatosis Center offers personalized and compassionate care for children and adults with neurofibromatosis (NF) types 1 and 2 and schwannomatosis. These disorders can cause tumors, which are usually benign, to form on nerves. 

These conditions can affect many parts of the body. Because of this, we have put together a team of specialists to address the challenges our patients may experience. These specialists are part of the world-class team at NYU Langone Medical Center. 

We are committed to researching better and safer treatments for people with NF. We lead clinical trials for NF, and are the only New York member of the Neurofibromatosis Clinical Trials Consortium. We have received the Affiliate Clinic designation from the Children’s Tumor Foundation, a non-profit organization committed to ending NF through research. 

Make an Appointment

We have two nurse coordinators dedicated to helping patients and their families coordinate the care they need. 

To schedule an appointment, please contact our nurse coordinators, Carole Mitchell, MS, RN, or Celia Engelson, MS, FNP, at 212-263-9695. If you are hearing impaired, please email carole.mitchell@nyumc.org or celia.engelson@nyumc.org.

Our nurse coordinators discuss your needs by phone or email and determine which of our doctors best matches your specific condition and concerns. All prior imaging and medical records are requested. A social worker may contact you to assist with any special needs you may have. 

Your First Appointment

Your first appointment at the Comprehensive Neurofibromatosis Center is with Dr. Jeffrey Allen, Dr. Kaleb Yohay, or Dr. Matthias Karajannis. A detailed physical and neurological exam is performed and all previous records and tests are reviewed. Depending on your diagnosis, we may recommend additional tests, such as imaging studies and genetic testing.

The results of these tests will help determine the care plan that is best for you. Other NYU Langone experts—including behavioral and learning specialists, geneticists, neurosurgeons, orthopaedic surgeons, audiologists, plastic surgeons, and ear, nose, and throat specialists (also known as otolaryngologists)—may assist in your care.

Learn more about our approach to neurofibromatosis treatment.

More About Our Center

Stephen D. Hassenfeld Children’s Center for Cancer and Blood Disorders

Our world-class team treats children and adults with neurofibromatosis 1 and 2 and schwannomatosis.

Learn More

Our Team

Doctors at the Comprehensive Neurofibromatosis Center come from a range of specialties including oncology, neurosurgery, and otolaryngology.

Meet Our Doctors

Our Leadership

  • Jeffrey C. Allen, MD
    Co-Director | Pediatric Oncology, Pediatric Neurology, Neurology

    Dr. Allen is a pediatric neurologist and neuro-oncologist with longstanding experience in the management of children and young adults with tumors arising in the brain, spinal cord, and peripheral nerves. He has a special interest in neurofibromatosis-related disorders and oversees the clinical trials portfolio offered by our membership in the NF Clinical Trials Consortium.

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  • Kaleb H. Yohay, MD
    Co-Director | Neurology

    Dr. Yohay is a pediatric neurologist who has more than a decade of experience specializing in the care of adults and children with NF1, NF2, and schwannomatosis.

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  • Matthias A. Karajannis, MD
    Director, Neurofibromatosis Clinical Research Program | Pediatric Oncology, Pediatric Hematology, Pediatrics

    Dr. Karajannis is a pediatric oncologist and neuro-oncologist experienced in the care of children and young adults with tumors of the nervous system, including patients with NF1, NF2, and schwannomatosis. He leads a number of research studies related to NF, including clinical trials.

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Plan Your Visit

Our Locations

Comprehensive Neurofibromatosis Center

160 East 32nd Street
Floor L3
New York, NY 10016

Comprehensive Neurofibromatosis Center—Ambulatory Care Center

240 East 38th Street
20th Floor
New York, NY 10016