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Hassenfeld Children’s Hospital of New York at NYU Langone Leading Important Partnerships with Children, Families & Healthcare Professionals

Collaboration on International Conference Underscores Efforts to Share Novel Approaches to Foster Family Engagement & Improve Patient Experience

As the healthcare industry increasingly focuses on patient experience at all levels of care, Hassenfeld Children’s Hospital at NYU Langone is taking major steps forward to advance efforts to improve communication and engagement between families and their medical teams.

Many of the hospital’s recent advances will be highlighted at the 7th International Conference on Patient- and Family-Centered Care, sponsored by the Institute for Patient- and Family-Centered Care (IPFCC) from July 25 to 27, 2016, at the Marriott Marquis in New York City. Hassenfeld Children’s Hospital is serving as the lead sponsor.

Experts from Hassenfeld Children’s Hospital and its Sala Institute for Child and Family Centered Care will present innovative approaches to help create meaningful and productive partnerships among patients, families, and healthcare professionals across all aspects of care delivery for children. The Sala Institute provides the foundation and expertise to develop innovative programs to enhance the overall quality and safety of patients in the region and far beyond.

“As leaders in the field of pediatrics, we’re proud to partner with IPFCC, an internationally recognized institute focused on fostering collaboration among patients, families, and healthcare professionals, to present innovative and collaborative approaches by leading experts in the field,” says Catherine S. Manno, MD, the Pat and John Rosenwald Professor and chair of the Department of Pediatrics at NYU Langone. “This conference will allow us to contribute to the growing body of knowledge regarding patient- and family-centered care focused on improving the patient experience at institutions treating children across the country and around the world.”

Presentations and posters by NYU Langone experts include:

Novel Interventions, Meaningful Outcomes: A Multi-Tiered Approach to Building Patient and Family Partnerships in Delivery System Research

Presenters: Ron-Li Liaw, MD, Lauren Knickerbocker, PhD, Beth Silber, MPA, and Mary Ann Harris, LCSW

Traditional research methods that examine best design concepts for patient care rarely engage patients and families as true partners. Rather, they are included late in the planning process—and usually only as study participants. This randomized control trial incorporated patients and families from the outset as partners in design, testing, and evaluation of a brief psychotherapy for patients with inflammatory bowel disease and co-morbid depression and anxiety. Researchers recruited and trained patients and families to create a Research Youth and Family Advisory Team. Examples of feedback included valuable changes in recruitment, the makeup of the research team, study interventions, and outcomes measures. They will present a roadmap of their multi-tiered approach to building patient and family research partnerships.

Harnessing Technology: Impact on Culture, Practice, and Outcomes When Inpatients Have an Electronic Health Record Portal in Their Hands: A Leadership and Patient/Family View

Presenters: Michele Lloyd, BSN, Jacquelyn Fuller, BSN, Nancy Beale, BSN, MSN, RN-BC, and Kimberly Kilcoyne, BA, MS

Technology, when implemented in partnership with clinicians, patients, and families, is a powerful enabler of patient- and family-centered care. Building a culture based on open access to information and shared decision-making can be challenging when not every person in the partnership has access to the same information. NYU Langone realized an opportunity to close that gap through the adoption of technology that gives patients, at admission, a tablet that is a portal to their inpatient electronic health record. With patients and families as partners, technological and clinical solutions were developed to realize the patient-centered benefits of improved communication and coordination of care.

Patient and Family Faculty in High Impact Interprofessional Education—from Classroom to Simulation Center

Presenters:  Juliette Schlucter, Jennifer Daly, Dennis Sklenar, LCSW, Lea Devins, MSN, RN, Michael Goonan, MD, and Jeremy Donovan

Family faculty programs are a powerful tool in healthcare education. At NYU Langone, patients and families who receive care at the Hassenfeld Children’s Hospital partner with healthcare professionals to teach patient- and family-centered best practices in care, based on their own lived experience. This breakout session will present an interactive, real-time simulation scenario between actors playing patients and an interprofessional team of clinicians. NYU Langone family faculty, along with help from the audience, will provide feedback on ways to improve communication between the patient and the healthcare team.

Patient Experiences as Drivers of Change: A Unique Model for Reducing Transgender Health Care Disparities at an Academic Medical Center

Presenters:  Aron Janssen, MD, Richard E. Greene, MD, Oscar E. Dimant, and Tiffany E. Cook

Transgender individuals face stark health disparities, including frequent maltreatment in healthcare settings. NYU Langone researchers created a focus group of transgender individuals to learn more about their experiences receiving medical care, and the information gathered has shaped standardized patient scenarios that are being used to train NYU Langone medical students learning clinical skills. Furthermore, based on the stories gathered from the focus group, the medical center has made specific interventions that target improved medical education and policies within the medical center, including creating an objective structured clinical examination (OSCE) as part of the mandatory medical school curriculum, in which students are routinely given guidance on best practices for treating transgender patients, and the opportunity to simulate treating a “standardized patient” played by a transgender actor.

A Vital Voice in Healthcare: Partnering with Teenage Patients as Advisors and Teachers for the Best Care

Presenters: Erin Lauinger, LCSW, MSW, Jami Barretta, BA, MS

Listening to and learning from the voice of the teenage patient is a critical factor in effective patient- and family-centered care, though a significant gap exists when it comes to consistently incorporating this voice into hospital operations and delivery of care. Through NYU Langone’s Youth Advisory Council, the medical center has emphasized the importance of establishing a listening culture to promote a mutually beneficial relationship between healthcare workers and the adolescent population, ensuring the teen perspective is incorporated into the operational priorities of the hospital.

Media Inquiries:

Annie Harris
Phone: 212-404-3588

Please contact Annie Harris if you are a member of the media and would like to attend any of these presentations or the entire conference, or if you wish to develop stories based on these presentations.

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