The Center for Child and Family Experience, part of the Sala Institute for Child and Family Centered Care, weaves the important perspective of young patients and families into the fabric of care, support, and education at Hassenfeld Children’s Hospital at NYU Langone.
We do this by establishing best practices for child- and family-centered care. We also create resources for children, families, and healthcare providers that lead to improved safety, higher quality of care, better patient outcomes, and more supportive experiences for children and their families.
The following tools were developed and deployed to provide point-in-time assessments guiding our understanding of the child, family, and staff experience and aiding in setting priorities:
Advancing identified priorities happens through partnership programs with patients, families, and clinicians that foster working together in a model of co-design.
We partner with young patients and families to inform our mission to improve safety, quality, and the experience of care. We do this by working individually with families, and also by inviting them to serve as members of the Sala Family Advisory Council and Sala Youth Advisory Council.
Advisory Council members provide perspectives and recommendations that guide decisions regarding all aspects of our programs and services. They also serve as members of safety and quality teams, demonstrating how children and families can be allies in improving care quality and outcomes.
At the Sala Institute, we bring together the expertise of patients, families, and clinicians to create educational resources that embody our philosophy of partnership. Our signature mirror image handout, created for both families and staff, lists side-by-side the discrete steps that parents and members of the clinical team can follow as they partner in safe care and effective communications. Through our mirror image approach, we clarify the distinct and reciprocal roles families and staff have in a variety of safety protocols and communication forums, such as central line care and Family-Centered Rounds.
Teaching in Partnership Program
The Sala Patient and Family Faculty Program brings together experienced clinicians and trained patient and family advisors to teach and coach healthcare professionals at all levels of proficiency about the experience of care through the lens of the patient and family.
Learning takes place in the classroom setting where patients and families, trained as Patient and Family Faculty, partner with experienced clinicians to teach a competency-based curriculum to advance a culture of patient- and family-centered care. Patient and Family Faculty share personal narratives and bring to life the heart and soul of caring partnerships.
We also use a model of scenario-based immersive simulation with interdisciplinary teams of learners, standardized patients, family advisors, and clinical experts to assess and enhance the practice of family-centered care.
The Patient and Family Faculty Program scenarios Speak Up and Engaging Families in Sepsis Huddles in the Emergency Department are sample simulation program packets that contain examples of our patient and family faculty resources for professionals, including case overview, patient- and family-centered core competency scorecard, standardized patient guide, and facilitation guide.
Peer Support Program
The Sala Institute is committed to providing children and families with access to the unique support that comes from people who can share first-hand experiences. During Sala Family to Family Hours, our family advisors, experienced in navigating healthcare, host informal gatherings that provide respite, refreshments, and peer support. Our Sala Knowledge Library is a collection of videos in which children and families share their wisdom and strategies on how to best cope with a diagnosis and the experience of care.
For more information about the Center for Child and Family Experience, please contact firstname.lastname@example.org.