$291,826.65

Our nephew, Kyle, passed away with his loving family by his side on April 7, 2020 from complications of aspiration pneumonia brought on by unremitting seizures. Born with Dup15q Syndrome where over half of those affected experience seizures, Kyle experienced intractable, chronic episodes. He handled his afflictions with grace and a beautiful soul while bearing the burden of manifesting both Dup15q Syndrome and chronic seizure disorder. The last few months were particularly unrelenting. With love and deep respect for Kyle's devoted parents and siblings - his mother and our sister Val Anderson; his father Scott Anderson; his sister Courtney Lewis, and his brother Taylor Anderson, we hope that you will consider contributing to help us further much needed research on the Dup15q Syndrome, and to search for better treatments for epilepsy and seizure control until we can find a cure. Kyle nearly made it to Easter, a special holiday for our family, and almost to his 35th birthday in May. While his life was tragically cut short, we hope and pray that others suffering from these often co-morbid syndromes will have a better chance to fight them in the near future. Val and Scott want to thank Dr. Orrin Devinsky for his knowledge, compassionate care, and concern, and his ongoing commitment to finding new treatments and hopefully a cure for Dup15q Syndrome, and for better treatments for epilepsy and seizure disorders. Please consider a donation in memory of our beloved nephew, Kyle Scott Anderson who will be dearly missed.

"The strife is o'er, the battle done;

the victory of life is won;

the song of triumph has begun."

Godspeed, Kyle.

 
How Your Support Makes a Difference
This campaign supports: FACES (Finding a Cure for Epilepsy and Seizures)

Your gift to FACES helps our specialists make major strides toward a cure for epilepsy, while providing exceptional clinical care, education, awareness, and support to all who come to us for care.