Thank you for supporting life-changing epilepsy care and research.
A Banner Evening for Supporting Epilepsy Research and Care
Over 700 friends of NYU Langone’s Comprehensive Epilepsy Center turned out to support Finding a Cure for Epilepsy and Seizures (FACES), raising more than $4.7 million for research and clinical programs. The evening featured silent and live auctions, as well as an update on the Medical Center’s recent progress in caring for people with epilepsy and seizure disorders from Orrin Devinsky, MD, director of the Comprehensive Epilepsy Center and founder of FACES.
Emphasizing the invaluable role of philanthropic partners in enabling innovative work at the Comprehensive Epilepsy Center, Dr. Devinsky highlighted some of the life-changing initiatives made possible by supporters of FACES. “The FACES Gala is the world’s largest fundraiser to advance epilepsy research and care,” said Dr. Devinsky. “The funds raised have supported an unprecedented number of basic and clinical science collaborations that have contributed to the discovery of new epilepsy genes and new epilepsy therapies.”
Lynn and Majid Jafar, founders of Loulou Foundation, were honored for their commitment to advancing knowledge of and therapies for CDKL5 deficiency, a rare genetic disorder that causes seizures beginning at a very young age. In addition, Christine and Michael Jasulavic spoke about their personal connection to FACES through their daughter’s CDKL5 diagnosis. “Dr. Devinsky and the entire NYU Langone staff are superheroes fighting this monster we call epilepsy,” said Mr. Jasulavic. “They do it with grace and without losing sight of patients and families.”
The FACES Gala was co-chaired by Donna Emma and Lawrence Davis, with Melisa and Josh Fluhr serving as auction chairs. David Remnick, editor of The New Yorker, contributed poignant remarks as the evening’s emcee, and C. Hugh Hildesley reprised his role as auctioneer.